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Guan Leiming

Technical Director | Java

Seeking a life without “missing”: Rare diseases, natural medicine and a ray of hope

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Rare diseases, as a difficult problem in the medical field, affect the quality and length of life of patients. However, the rise of natural medicine is like a ray of light in the darkness, bringing new hope to these patients. Natural medicine emphasizes the use of the power of nature, such as herbs, acupuncture, dietary adjustments, etc., to promote the body's self-repair and balance.

Many studies have shown that natural medicine has significant effects in alleviating the symptoms of rare diseases and improving the quality of life of patients. For example, for some rare diseases of the nervous system, acupuncture can stimulate nerve pathways, improve muscle function and relieve pain. In terms of dietary adjustments, developing personalized nutrition plans for specific rare diseases can help enhance patients' immunity and physical functions.

However, natural medicine is not a panacea. It faces many challenges in its promotion and application. On the one hand, the deep-rooted traditional medical concepts have limited the acceptance of natural medicine. On the other hand, the efficacy evaluation system of natural medicine is still imperfect and lacks large-scale clinical trial data support.

Nevertheless, we cannot ignore the potential of natural medicine in the treatment of rare diseases. All sectors should increase investment in natural medicine research, establish a scientific evaluation system, and create more survival possibilities for patients with rare diseases.

In this process, there is a group of people who silently dedicate themselves. Although they are not directly involved in medical research and treatment, they provide important support for the development of this field. They are volunteers who participate in related work part-time. They use their spare time to raise funds for patients with rare diseases, promote the concept of natural medicine, and participate in rehabilitation care.

These volunteers come from different industries and backgrounds. Some are office workers who use their weekends to participate in charity activities; some are students who use their holidays to help patients. Although their contributions may seem insignificant, they have formed a powerful force when gathered together.

For example, a volunteer named Li Hua, who was originally an ordinary office worker, decided to use his spare time to participate in charity organizations after learning about the plight of patients with rare diseases. He launched a fundraising campaign through an online platform and raised a large amount of treatment funds for patients. At the same time, he also actively promoted the concept of natural medicine to people around him, so that more people can understand this new treatment method.

Another volunteer, Xiao Zhang, is a college student. He uses his vacation time to visit the homes of patients with rare diseases to provide them with rehabilitation care services. He patiently helps patients with rehabilitation training and guides them to eat properly and adjust their lifestyle habits. With his help, the conditions of many patients have been effectively controlled and their quality of life has been significantly improved.

The efforts of these volunteers not only brought practical help to patients with rare diseases, but also made more people pay attention to this group. Their actions conveyed love and positive energy, making the society warmer and better.

At the same time, participating in these jobs part-time also allows volunteers to grow and exercise themselves. Through contact with patients with rare diseases, they know how to cherish life and care for others. In the process of organizing and participating in charity activities, their communication skills, organizational skills and teamwork skills have been greatly improved.

However, it is not all smooth sailing to participate in these jobs part-time. Volunteers face the dual pressure of time and energy. Sometimes they are unable to devote themselves to charity activities due to the busy work and study. In addition, the shortage of funds and resources is also an important problem they face. Due to the lack of sufficient financial support, many charity activities cannot be carried out smoothly, which affects the effectiveness of the help.

In order to better support the work of part-time volunteers, all sectors of society should work together. The government can introduce relevant policies to encourage and support the development of public welfare organizations and provide them with necessary financial and resource support. Enterprises can provide assistance to public welfare activities through donations, cooperation, etc. Individuals should also actively participate in public welfare activities and contribute their own strength to patients with rare diseases.

In short, natural medicine has brought a ray of hope to patients with rare diseases, and the efforts of part-time volunteers have injected new vitality into the development of this field. I believe that with the joint efforts of all sectors of society, we will be able to create a better future for patients with rare diseases.

2024-07-26